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Susan Nussbaum, 68, Who Pressed for Disability Rights in Her Plays, Dies

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Title : Susan Nussbaum, 68, Who Pressed for Disability Rights in Her Plays, Dies
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Susan Nussbaum, 68, Who Pressed for Disability Rights in Her Plays, Dies

After decades of work in theater, she turned to fiction. Her novel “Good Kings Bad Kings,” which follows workers and residents in a Chicago care institution for people with disabilities, earned acclaim for its candor and sensitivity and won the 2012 PEN/Bellwether Prize for Socially Engaged Fiction.

The book’s title came from reporting in about Jonathan Carey, an autistic boy who was killed by an employee of the Oswald D. Heck Developmental Center, near Albany, where Jonathan was living. “I could be a good king or a bad king,” the man told the boy as he asphyxiated him, according to court documents.

That line stuck with Ms. Nussbaum, she said in a 2013 interview with the website Bitch Media. “It became the title because it reminded me how, when it comes to kids, the adults have all the power. And when the adult in question has no emotional connection to the child, and the child’s welfare is turned over to that adult — as is the case in institutions — terrible things can happen.”

She continued: “The disabled characters we’re presented with usually fit one or more of the following stereotypes: victim, villain, saint, monster. The fate of the disabled character is usually miraculous cure, death or institutionalization.”

In writing the novel, as in her other work, Ms. Nussbaum said, “It was really important to me to give disabled characters — more than one — their own voices, and the agency to represent themselves and their own perspective on what happens.”

Susan Ruth Nussbaum was born on Dec. 2, 1953, in Chicago to Mike and Annette (Brenner) Nussbaum. Her mother worked in public relations. She grew up in Highland Park, a suburb of Chicago, and attended Highland Park High School, graduating in 1972.

Interested in theater from a young age after running lines with her father, she began writing plays in high school. After graduating, she took drama classes at the Goodman School of Drama (now The Theatre School at DePaul University) in Chicago.



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